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WEBSep 25, 2024 · The number of stroke cases among adults and children with sickle cell disease (SCD) continues to increase in at least one U.S. state, indicating a need for greater adherence to standard-of-care blood transfusions and more attention paid to factors that can be controlled to reduce the risk of…. October 1, 2024 News by Steve Bryson, PhD.
Desferal, to prevent iron overload with SCD, acquired by Mitem
WEB4 hours ago · by Patricia Inácio, PhD October 8, 2024. Mitem Pharma has acquired worldwide rights to Desferal (deferoxamine), a therapy commonly used to lower excessive and damaging iron levels induced by blood transfusions in people with sickle cell disease (SCD) or other anemias. The acquisition was reached …
Vaso-Occlusive Crisis - Sickle Cell Disease News
WEBJan 4, 2022 · A vaso-occlusive crisis, or VOC, occurs when sickled red blood cells block blood flow to the point that tissues become deprived of oxygen. This in turn sets in motion an inflammatory response as the body tries to rectify the problem. The result is substantial pain, which can affect any part of the body, but most commonly occurs in the back ...
Stroke rate rising for adults, children with SCD in US: Study
WEB5 days ago · Among a total of 7,636 patients, the chances of having a first ischemic stroke — caused by a blocked blood vessel — were 2.1% by age 20 and 13.5% by age 60. For intracranial hemorrhage, a type of stroke caused by a burst blood vessel, the chances were 0.5% by age 20 and 6.8% by age 60. While the number of …
Siklos Now Approved in US for Adults With Sickle Cell Anemia
WEBFeb 17, 2022 · Siklos (hydroxyurea) is now approved in the U.S. to reduce the frequency of painful crises and lower the need for blood transfusions in adults with sickle cell anemia, the most common and usually the most severe form of sickle cell disease. The medication already was approved for the same indications in children ages 2 and older.
Oxygen therapy for sickle cell disease
WEBAug 20, 2024 · Oxygen therapy, which involves having a person breathe in extra oxygen, is a medical intervention that may be used to help manage acute complications of sickle cell disease (SCD) associated with vaso-occlusion, or blood vessel blockage. It also has been proposed as a preventive or supportive measure for SCD patients in other situations, but ...
Sickle Cell Patients at Higher Risk of Death From Kidney Disease
WEBNov 1, 2022 · During that time, 2,194,079 people developed ESKD, 2,018 (0.09%) of whom had an SCD diagnosis. SCD patients were diagnosed with kidney failure at a significantly younger age, by about 10 years, than people without SCD.
At times, stepping back from advocacy is the wise thing to do
WEB4 days ago · Mary Shaniqua Mary Shaniqua is a sickle cell patient (HbSS) living in the United Kingdom. She was diagnosed with sickle cell at 18 months old and uses "Shaniqua’s Sickle Chronicles" to narrate her experiences, to educate healthcare professionals, as well as empower and embolden other sickle cell patients. Mary Shaniqua is committed to raising ...
Infections are a silent menace for many with sickle cell disease
WEBMar 27, 2024 · Sickle cell disease predisposes people to infections and can aggravate the severity of an infection by compromising the immune system. The spleen is a vital organ in the immune system, responsible for filtering blood, removing old or damaged cells, and producing antibodies. In sickle cell disease, the sickling of red blood cells can impair ...
How locking away my sickle cell pain negatively affected me
WEBOct 2, 2023 · I have been on a journey since 2018 to share my experiences with sickle cell disease and help others avoid some of the mistakes I’ve made along the way. This journey has exposed me to many different concepts that I reevaluate regularly. For instance, I’ve written previously about the idea that sickle cell is a …